ABOUT

ADVOCACY

ADVOCACY

Iron Disorders Institute (IDI) is a national voluntary health agency with an international reach.  Our focus is on specific iron disorders: HFe-related hemochromatosis/iron overload, iron deficiency with and without anemia, African siderosis, dysmetabolic iron overload syndrome, and anemia of inflammatory response.

We exist so that people with iron disorders receive timely, accurate, complete diagnosis, have awareness of appropriate therapeutic choices, and be equipped to live in good health. Our vision is that no one should suffer and die prematurely because of an iron disorder.

We carry out our mission and vision by raising public awareness and advocating for patients and their families. Find out how you can help raise awareness in your community. Ask for a copy of our Track Record and Today’s Priorities info@irondisorders.org

More than 90 million Americans are dealing with an iron disorder and lawmakers may not be aware that early detection and treatment of an iron disorder is cost-saving and life-saving.

If you wish to reach out to representatives serving on the Health, Education, Labor, and Pensions Committee https://www.congress.gov/committees

You may contact your representatives using the American Society of Hematology Advocacy Toolkit

 

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PATIENT STORY

THE DANGERS OF MISDIAGNOSIS

Gerry Koenig’s Story required 2 liver transplantations due to misdiagnosis.

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info@irondisorders.org

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Irondisorders.org is a digital education and awareness effort provided

by Iron Disorders Institute, a 501 c (3) non-profit agency. 

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