A stakeholder is any one person, group or agency affected by or capable of influencing an outcome on an issue such as Iron-Out-of-Balance. Prominent stakeholders for iron disorders include patients and families of patients, healthcare professionals, educators, researchers, caregivers, treatment facilities, health policy and law makers, the insurance industry, makers of diagnostic and treatment aids or therapies, medical societies, laboratories, patient advocacy organizations, our military, schools and universities, businesses and the media.
The “flower” represents the collective body of stakeholders and demonstrates how Iron Disorders Institute overlaps with each area, engaging them to further the mission of the IDI.
Partners and alliances are agencies or businesses that support and help to carry out IDI awareness, outreach and educational programs and services. Alliances are other patient advocacy organizations that address specific diseases consequential to an iron imbalance. These diseases include, but are not limited to: osteoarthritis, osteoporosis, heart disease or heart attack, cirrhosis, liver cancer, diabetes, hormone imbalances (hypothyroidism, hypogonadism, infertility, impotence or depression); restless legs syndrome, autoimmune and neurodegenerative diseases. People with these diseases can have an iron imbalance. IDI directly addresses the specific diseases of hemochromatosis, iron deficiency anemia, anemia of inflammatory response and iron overload with anemia. In many cases IDI helps individuals address their iron imbalance and then provides additional resources by directing the patient to disease specific organizations such as The Arthritis Foundation, American Heart Association, etc. where the patient learns about how to manage their specific disease. These agencies can reciprocate by directing patients with an iron imbalance to Iron Disorders Institute. This type of teamwork pools resources to lower the risk of disease and premature death.
Government Health Agencies (GHAs)
GHAs promote policies that influence the health and well-being of US Citizens. Of the agencies, The Department of Health and Human Services (DHHS) is the United States government’s principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves. The GHAs that IDI works with primarily include The Veteran’s Administration; The US Department of Health and Human Services (Centers for Disease Control and Prevention, National Institutes of Health), The US Food and Drug Administration, The US Environmental Protection Agency and the US Department of Agriculture. IDI works with these agencies at a national level on public health issues such as research, education and health promotion, blood safety and use, disease prevention, public awareness and environmental safety. To learn more about other agencies that directly or indirectly influence health policies, visit U.S. Department of Health & Human Services
Influential Health Related Contributors (IHRC)
This group represents a body of influence on healthcare policies, funding for programs and provide venues for services, programs and research. This broad field includes legislators (Congress: Representatives and Senators), universities, treatment centers, health systems, clinics, insurance industry, the media, health editors, laboratories and professional medical associations. Collaborations with these contributors include addressing issues such as access to care, health disparities, genetics privacy, health policies, private and congressional funding.
HEMOCHROMATOSIS:A FAMILY’S STORY
Explore Christine O’Leary’s father’s story with Hemochromatosis.