ABOUT

RARE DISEASES

ABOUT TOO MUCH IRON

11 Million Americans or more have the genes that can result in too much iron.

ABOUT TOO LITTLE IRON

Iron deficiency with and without anemia are a key focus areas for Iron Disorders Institute.

Rare Diseases

Many rare or uncommon diseases have iron overload or anemia as a consequence of the disease itself or the treatment (blood transfusion or iron infusion). In the formation, breakdown or function of blood cells, proteins and enzymes anemia can be mild and easily managed or severe and life-threatening.

We encourage you to learn more about these more rare diseases through the organizations established specifically to address the disease or the National Organization of Rare Diseases (NORD).

  • Aplastic Anemia
  • Myelodysplastic Syndromes
  • Sideroblastic Anemia
  • Hypoplastic Anemias
  • Paroxysmal Nocturnal Hemoglobinuria
  • von Willebrand Disease
  • Hemophilia
  • Hereditary Hemorrhagic Telangiectasia
  • Red Cell Enzymopathies: Glucose-6 Phosphate Dehydrogenase (G6PD) or
  • Pyruvate kinase deficiency (PKD)
  • Atransferrinemia or hypotransferrinemia
  • Aceruloplasminemia or hypoceruloplasminia
  • CDAII: (congenital dyserythropoietic anemia) Also called:HEMPAS (Hereditary Erythroblastic Multi-nuclearity with Positive Acidified Serum lysis test)

NEED TO LOOK AT YOUR NUMBERS?

ORDER IRON TESTS TODAY.

We've partnered with Accesa Labs to make iron tests convenient and affordable.

PATIENT STORY

THE DANGERS OF MISDIAGNOSIS

Gerry Koenig’s Story required 2 liver transplantations due to misdiagnosis.

Email

info@irondisorders.org

To Get ON the List: ExcessIron-on@mail-list.com

To Get Off The List: ExcessIron-off@mail-list.com

IDI uses a confirmed opt-in subscription process to guarantee that you want to subscribe. Check your email for additional steps needed to respond to the confirmation notice and how to post messages. You will not be able to post messages to the List until you have completed these steps.

Irondisorders.org is a digital education and awareness effort provided

by Iron Disorders Institute, a 501 c (3) non-profit agency. 

Privacy Policy