Online Discussion Group


Purpose, function and management of online patient support services

Iron Disorders Institute provides online patient support services. One of the most popular is the Excess Iron Discussion List.

The List provides a modestly censored* open venue through which patients can share experiences with other patients although, sometimes healthcare professionals participate. The List is “strictly opinion” and support.  The benefit of this openness allows us to learn what is important to people while its members get to know one another and appreciate that they are not alone–there is a high degree of camaraderie and community spirit on the List, which can be encouraging to someone who is reaching out.
*we do not block individuals for their opinion so long as it is iron related. When content is not iron related, it is reviewed by individuals at Iron Disorders Institute who determine if the content does not suit the purpose and guidelines of these venue.

If you have questions or problems with our online venues please contact Stephanie Clary:

To Get ON the List

To Get Off The List

IDI uses a confirmed opt-in subscription process to guarantee that you want to subscribe. Check your email for additional steps needed to respond to the confirmation notice and how to post messages. You will not be able to post messages to the List until you have completed these steps.

Iron Tools

Explore life-saving resources

Support group

Find a doctor

Forms & Charts



Videos About Iron

Real Stories. Real Patients. 

Aran Gordon - The Man Who Turned Orange

Christine O'Leary - A Family Story

Gerry Koenig - The Dangers of Misdiagnosis

Explore all articles

Order Iron Tests

Simple and Secure

This iron blood test panel measures the hemoglobin, ferritin, fasting serum iron, TIBC (total iron binding capacity) and transferrin levels.

Order Now

About Our Sponsor

At ironology, we have all personally struggled with Iron-Out-of-Balance®. In addition to our founding members having battled their own life-threatening iron disorders, we’ve experienced the worry of how to help family members and friends who’ve been diagnosed.

Copyright 2020. Iron Disorders Institute. All Rights Reserved. Privacy Policy.