Welcome To The Iron Disorders Ambassador Area
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Instructions | Become An Ambassador | Physician Reference Chart | Community Report
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Thank you for your decision to help Iron Disorders Institute! Those of you who are new to IDI may not know that I am one of the founding directors of the organization; my husband
Harry has hereditary hemochromatosis. We know first-hand the suffering and challenges that come with this condition. So, I am delighted that you are willing to join forces here and help me with a very big job!
I am organizing people who want to help raise awareness about hemochromatosis in their community. Some of you have already talked with me by phone and I am touched by your
eagerness to be involved. I also thank you for your comments and input about what is still a huge problem in the USA: the need for one set of hemochromatosis
practice guidelines! As so many of you report, doctors still perform unnecessary liver biopsies,
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still do not order the complete set of iron tests,
still over-bleed or under-bleed patients, and sadly our blood is still being thrown away in many communities. We need you to help us turn this around!
In the USA there are:
918,000 Physicians
4.8 million Nurses
And 11,200 Physician Assistants joining the healthcare profession each year
We need to reach all of them!
I am so excited about the potential to work with old friends and new. Use the sign up form to let me know how you want to help!
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